The other day we recieved a letter from GOSH telling us that they have a plan for Charlie's next surgery. They have been in contact with the Children's hospital in Boston America and have asked for their top surgeon to come over and perform the surgery with Charlie's surgeon.
They are hoping to move the Aortic valve to the position of the pulamary valve which was replaced with a cardiac conduit.
The letter stated that they will have Charlie down for pre ammittance the day before surgery to carry out tests and if they were confident and able to perform surgery, they will if nbot we will be sent home.
Yesterday we recieved another letter saying that Charlie was now on the surgery waiting list and asked for dates that he may not be available i.e, holidays.
This has come as a shock to us as we thought or more like hoping, that it would be months before surgery, it still could be but now he is on the list it could be anytime.
All my fears and anxiety are coming back and im scared for Charlie as this will be a huge op for him, GOSH have not done this op before hence asking an American surgeon to come over but im not even sure he has done it before either, they are in talks with eachother but with the letter stating that they may not be confident enough to do it frightens me and what will they do if thay can't do it?
I', very worried and scared
Steve
Thursday, 21 April 2011
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