A date for Charlie's ohs

It's been nearly a year since i last updated my blog but only becouse we have had no news on Charlie's op...but now we have.

Charlie's next ohs will be on the 4th April 12 with pre admission on the 3rd. The surgeon from Boston Children's hospital will be flying over to carry out the op along with surgeon Victor Tsang from GOSH.

We were expecting a date but as the months rolled on and we still had no confirmation of a date it has come as a bit of a shock, this is another BIG op hence why GOSH have a surgeon from America to do it.

We won't be telling Charlie till very near the time as he is will worry and we don't want to scare him. At the moment he is gaining weight though he still only weighs about 30lb, he is on maxijule for his weight and asprin to keep his veins clear, his sats are dropping slowley and are now at 81/82%.

Charlie is now at school though he isn't a big fan of it bless him but once he is there he seems to be fine.

I will keep this blog upto date when there is something to tell you, i'm hoping this will be some kind of therapy for me while we are in hospital trying to cope with all the stress and worry.

Please feel free to comment.

Steve